Portal Links

Physicians and
Health Care Professionals

The THAOS registry is a global, observational study of patients and carriers with transthyretin amyloidosis, including both inherited and wild type disease.  Access the Physician portal to learn more about transthyretin amyloidosis as well as global sites participating in the study and potential support opportunities for your patients with transthyretin amyloidosis.

Patient and Caregivers

The THAOS is a global, observation study of patients with transthyretin amyloidosis whose goal is to increase the understanding of the disease and to improve outcomes.  To learn more about the disease as well as clinical sites participating in the survey and potential support groups for you or your family, please access the Patient’s portal.

THAOS Investigator

For participating THAOS investigators and their staff.

About THAOS

The THAOS registry is a 10 year global observational study looking at the natural history of patients with transthyretin amyloidosis as well as asymptomatic carriers of the genetic defect.
 
The THAOS.net website is an informational site intended to educate physicians and patients about Transthyretin Amyloidosis. The Physician and Health Care Professional Portal contains information on Transthyretin Amyloidosis as well as relevant scientific references. The Patient Portal contains useful patient information describing the signs and symptoms of transthyretin amyloidosis as well as a patient video which describes the genetics and the science around the development of this disease.  Also included as a resource on this website are links to the sites that are participating in the THAOS (Transthyretin Amyloidosis Outcomes Survey) study.

Investigators in the THAOS study may also enter an ID/password protected portion of this website specifically related to study-related activities.

Financial support for the THAOS registry has been provided by Pfizer.  The THAOS registry is overseen by a scientific board comprised of scientific and clinical experts in the field of amyloid disease, including Pfizer representation. Pfizer is the legal owner of all THAOS registry data, and may use the THAOS registry data for purposes including regulatory submissions.

Copyright ©2012 Pfizer Inc

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