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ATTR Treatment Centers
(includes participating THAOS sites)
Argentina | Austria | Belgium | Brazil | Canada | Cyprus | Denmark | Estonia | France | Germany | Hungary | Italy | Japan | Netherlands | Portugal | Spain | Sweden | Switzerland| Taiwan | Turkey | United Kingdom | United States
Argentina
Site 26: Fabio Barroso, MD
Department of Neurology
Instituto de Investigaciones Neurológicas Raúl Carrea, FLENI
Montañeses 2325, Ciudad Autónoma de Buenos Aires, Argentina.
Tel ++54 11 57773200
Fax ++54 11 57773209
http://www.fleni.org.ar
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Austria
Universitätsklinik für Innere Medizin II
Allgemeines Krankenhaus
Währinger Gürtel 18-20
1097 Wien
Austria
Tel: 43 1 40400 4614
http://www.kard.at/
Landesnervenklinik Linz Wagner-Jauregg
Wagner-Jaureggweg 15
A-4020 Linz
Austria
Tel: 43 732 6921 25701
http://www.wagner-jauregg.at/36077.php
Medizinische Universität Innsbruck
Anichstraße 35
A-6020 Innsbruck
Austria
Tel: 43 512 504 23858
http://www.i-med.ac.at/neurologie/
Site 31: Gerald Mundigler, MD
Medizinische Universität Wien,
Universitätsklinik für Innere Medizin II, Kardiologie
Währinger Gürtel 18-20,
1090 Wien,
Austria
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Belgium
Cardiology
Center for Hereditary Heart Diseases
University hospital Gasthuisberg
Herestraat 49
3000 Leuven
Belgium
Tel: 0032 16 344248
http://www.uzleuven.be/ceh/
Site 29: Johan Van Cleemput, MD
Afdeling Klinische Cardiologie
O&N I
Herestraat 49 - bus 7003
3000 Leuven, Belgium
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Brazil
Site 02: Marcia Waddington-Cruz, MD
Hospital Universitario Clementino
Fraga FilhoRua Rodolpho Paulo Rocco
255-30 andar
Ilha do Fundao 21941-913
Rio de Janeiro, Brazil
http://www.hucff.ufrj.br/index2.htm
Site 43: Wilson Marques Junior, MD
Hospital das Clinicas de Ribeirão Preto
Unidade de Pesquisa Clinica – UPC
Av. Bandeirantes n° 3900 – Bloco G – Sub-solo 2.
Monte Alegre – Ribeirão Preto – SP
CEP: 14048-90
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Canada
Kingston General Hospital
76 Stuart Street
Kingston, Ontario K7L 2V7
Tel: (613) 549-6666
http://www.kgh.on.ca/
Princess Margaret Hospital
The Philip S. Orsino Hematology Centre
610 University Ave.
Toronto, ON, Canada M5G 2M9
http://www.uhn.ca/index.htm
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Cyprus
Site 14: Theodoros Kyriakides, MD
Director of Neuropathology Lab
Cyprus Institute of Neurology and Genetics
Zip Code 23462, 1683, Nicosia, Cyprus
Tel: 3 57 22819419
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Denmark
Site 19: Henning Molgaard, MD
Department of Cardiology B
Aarhus University Hospital, Skejby
Brendstrupgaardsvej 100
DK-8200Arhus N, Denmark
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Estonia
Neurology Clinic
Tartu University Hospital
Puusepa 2
51014 Tartu
Estonia
Tel: 372 7 318 501
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France
Service de neurologie
CHU de Bordeaux, Hôpital Pellegrin
Place Amélie Raba Léon
33076 Bordeaux Cedex
France
Tel: 33 (0)5 56 79 56 46
Fédération de neurologie
Service de Génétique médicale
CHU Hôpital Purpan
Place du Docteur Baylac - TSA 40031
31059 Toulouse Cedex 9
France
Tel: 33 (0)5 61 77 20 63 / (0)5.61.77.90.79
Hôpital Pierre Zobda Quitman - Unité de neuromyologie
CHU Fort De France
Route de Chateauboeuf La Meynard BP 632
97261 Fort De France Cedex
France
Tel: 33 (0)5 96 55 22 65
Service de neurologie
Groupe hospitalier Sud Réunion
BP 350
97448 Saint-Pierre - La Reunion Cedex
France
Tel: 33 (0)2 62 35 91 70
Service de Neurologie – Maladies Neuro musculaires
Unité de neurogénétique - Bâtiment Hénon
CHU - Hôpital de la Croix Rousse
103 Grande Rue de la Croix Rousse
69317 Lyon Cedex 4
France
Tel: 33 (0)4 72 07 25 55 / (0)4.72.07.18.66
Service de cardiologie médicale
CHU Hôpital Pitié-Salpêtrière
47-83 Boulevard de l'Hôpital
75651 Paris Cedex 13
France
Tel: 33 (0)1 42 16 30 01
http://www.cardiogen.aphp.fr/
Hôpital Antoine- Béclère
Service de cardiologie
157 Rue de la Porte de Trivaux
92141 Clamart Cedex
France
Tel: 33 (0)1 45 37 47 02
http://www.aphp.fr/index.php?module=offredesoins&action=afficherservice&vue=ods_hsc_service&hopital=028&service=0005
CHU de Bicêtre
Service de neurologie
78 Rue du Général Leclerc
94275 Le Kremlin Bicêtre Cedex
France
Tel: 33 (0)1 45 21 31 59
http://www.aphp.fr/index.php?module=offredesoins&action=afficherservice&vue=ods_hsc_service&hopital=010&service=0025
CHU Hôpital Henri Mondor
Service de Neurologie
51 Avenue du Maréchal de Lattre de Tassigny
94010 Creteil Cedex
France
Tel: 33 (0)1 49 81 43 12 / (0)1 49 81 23 07
CHU Pitie-Salpetriere
Federation de Neurologie
43-47, boulevard de l'Hôpital - 75651 PARIS cedex 13
France
Tel : 33 0(1) 42 16 00 00 / (0)1 42 16 17 62 / (0)1 42 16 19 31
contact.patients@psl.aphp.fr
http://www.aphp.fr/
Hôpital Paul Brousse Centre hépato-biliaire
16 Avenue Paul Vaillant-Couturier
94807 Villejuif Cedex
France
Tel: 33 (0)1 45 59 3403
http://www.aphp.fr/index.php?module=offredesoins&action=afficherservice&vue=ods_hsc_service&hopital=096&service=0006
CHRU - Hôpital Claude Huriez
Service de médecine interne
/ Department of medical genetics
Rue Michel Polonovski
59037 Lille Cedex
France
Tel: 33 (0)3 20 44 42 95 / 03.20.44.40.18
http://gapext.chru-lille.fr/~chrulille/prof_hospitaliser/faire_hospitaliser/79465.shtml
Site 35: Violaine Planté-Bordeneuve, MD
Service de Neurologie
CHU Henri Mondor
51 Avenue du Maréchal de Lattre de Tassigny
94000 Créteil
France
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Germany
Arbeitsgemeinschaft für Amyloidosekrankheiten/Chirurgische Universitätsklinik
Universität Heidelberg Im Neuenheimer Feld 110 69120
Heidelberg
Germany
Tel: 49 (0)700 726 27 327
Abteilung Innere Medizin V: Hämatologie, Onkologie und Rheumatologie
Universitätsklinikum Heidelberg Im Neuenheimer Feld 410 69120
Heidelberg
Germany
Tel: 49 (0)6221 56 8009
Klinik für Kinderkardiologie und angeborene Herzfehler
Deutsches Herzzentrum München
Lazarettstr. 36
80636 Munchen
Germany
Tel: 49 (0)89 1218 3005
Spezialambulanz für Herzgenetik, familiäre Arrhythmiesyndrome und plötzlichen Herztod
Medizinische Klinik und Poliklinik I
Klinikum der Universität München - Großhadern
Marchioninistraße 15
81377 Munchen
Germany
Tel: 49 (0)897095304
Klinik und Poliklinik für Neurologie Charité - Universitätsmedizin Berlin (CVK)
Augustenburger Platz 1, 13353
Berlin
Germany
Tel: 49 (0)30 450 560
Neurologische Poliklinik
Zentrum der Neurologie und Neurochirurgie
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt
Schleusenweg 2 - 16
60528 Frankfurt Am Main
Germany
Tel: 49 (0)69 6301 7468
http://neurologie.kgu.de/
Medizinische Klinik / Kardiologie
Universitätsklinikum an der TU Dresden
Fetscherstrasse 76
01307 Dresden
Germany
Tel: 49 (0)351 450 1701
http://www.kardiologie-tu-dresden.de/
Allgemeine Hochschulambulanz der neurologischen Klinik
St. Josef-Hospital Bochu
Klinikum der Ruhr Universität Bochum
Gudrunstrasse 56
44791 Bochum
Germany
Tel: 49 (0)234 509 2420
http://neurologie.klinikum-bochum.de/
MH Hannover
Zentrum Inn. Med. Gastroenterologie und Hepatologie
Carl-Neuberg-Str. 1
30623 Hannover
Germany
Tel: 0511 532 3305
Neurologische Klinik
Universitätsklinikum Düsseldorf
Moorenstr.5
40225 Düsseldorf
Germany
Tel: 49 (0)211 81 18978
Ambulanz für Gastroenterologie und Hepatologie
Medizinische Klinik und Poliklinik B
Universitätsklinikum Münster
Domagkstr. 3A
48149 Münster
Germany
Tel: 0251-83-57770
Medizinische Klinik und Poliklinik C - Kardiologie und Angiologie
Zentrum Innere Medizin
Universitätsklinikum Münster
Albert-Schweitzer-Str. 33
48149 Münster
Germany
Tel: 49 (0)251 83 47617
http://medc.klinikum.uni-muenster.de/
Site 37: Arnt V. Kristen, MD
Medical University of Heidelberg
Department of Cardiology, Angiology, Respiratory Medicine
IM Neuenheimer Feld 410D-69120 Heidelberg
Germany
Arnt.kristen@med.uni-heidelberg.de
Site 44: Hartmut Schmidt, MD
Universitatsklinikum Munster
Transplant Hepatology
Domagkstr. 3A,
48149 Munster, Germany
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Hungary
Psychiatry clinic
University of Pécs
József A. u. 2.
7623 Pecs
Hungary
Tel: 36 (06) 72 535 900
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Israel
Site 28: Menachem Sadeh, MD
Department of Neurology
Wolfson Medical Center
62 HaLohamim Street
PO Box 5
58100 Holon, Israel
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Italy
University di Pavia Hospital
IRCCS Policlinico San Matteo
Pavia
Italy
Tel: 39 0382 502 994
http://www.amiloidosi.it/
Centro Mario Fiori per lo studio dell’Amiloidosis
University of Bologna
Italy
http://www.eng.unibo.it/PortaleEn/default.htm
Policlinico Universitario Ospedale Maggiore
Sezione di Neurologia - Dipartimento di Scienze Neurologiche
Via F. Sforza 35, 20122
Milano
Italy
Tel: 39 02 503220429
U.O.A. di Patologia Cardiovascolare
Istituto di Anatomia Patologica
Policlinico Universitario di Padova
Via Arisitide Gabelli 61/63
3511 Padova
Italy
Tel: 39 049 8272286
http://anpat.unipd.it/serv/iap.s3
Site 30: Giuseppe Vita, MD
University of Messina
Clinica Neurologica 2°
Policlinico Universitario
98125 Messina, Italy
Site 32: Claudio Rapezzi, MD
Azienda Ospedaliero-Universitaria di Bologna
Policlinico Sant'Orsala-Malpighi
Via Albertoni 15
40138 Bologna
Site 40: Giampaolo Merlini, MD
Centro per lo Studio e la Cura delle Amiloidosi Sistemiche
IRCCS - Policlinico San Matteo - Viale Golgi, 19
27100 Pavia, ITALY
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Japan
Kumamoto University 39-1
Kurokami 2-chome
Kumamoto 860-8555
Japan
Tel: 81 96 344 2111
http://www.kumamoto-u.ac.jp/univ-e.html
Site 13: Shu-ichi Ikeda, MD
Professor and Chairman
Department of Medicine
Shinshu University School of Medicine
3-1-1 Asahi
Matsumoto 390-8621 Japan
Tel: 81 263 37 3056
http://www.shinshu-u.ac.jp/english/index.html
Site 34: Yukio Ando, MD
Kumamoto University
Department of Diagnostic Medicine
1-1-1 Honjo
Kumamoto, 860-8556
Japan
andoy709@kumamoto-u.ac.jp
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Netherlands
Site 17: Bouke P.C.Hazenberg, MD
Department of Rheumatology and Clinical Immunology
University Medical Center, Groningen
Hanzeplein 1
9713 GZ Groningen, The Netherlands
http://www.amyloid.nl/
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Portugal
Site 09: Teresa Coelho, MD
Unidade Clinica de Paramiloidose Hospital
Geral de Santo Antonio
Largo Prof. Abel Salazar
4099-001 Porto, Portugal
http://www.hgsa.pt/
Site 06: Isabel Conceicao, MD
Hospital Santa Maria
Servico de Neurologia, Piso 7
Av Prof Egas Moniz
1649035
Lisboa, Portugal
http://www.hsm.min-saude.pt/
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Spain
Site 04: Josep Campistol, MD
Hospital Clinic Villarroel
170 Escalera 8
Planta 5 08036
Barcelona, Spain
Servicio de Medicina Interna
Hospital San Jorge de Huesca
Av. Martínez de Velasco nº36
22004 Huesca
Spain
Tel: 34 974 247 044
Servicio de Neurología
Hospital General Vall d'Hebron
Pg. Vall d'Hebron, 119-129
08035 Barcelona
Spain
Tel: 34 934 894 029
http://www.lin-bcn.com/
Servicio de Neurologí
Fundación Jiménez Díaz
Av. Reyes Católicos, 2
28040 Madrid
Spain
Tel: 34 915 504 882
http://www.capiosanidad.es/fjd/es/investigacion/lineas/neurologia.html
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Sweden
Site 07: Ole B. Suhr, MD, PhD
Department of Medicine
Umea University Hospital
SE 901 85
Umea, Sweden
Tel: 46 90 785 3959
Karolinska Institutet
Karolinska University Hospital
Huddinge.
S-141 86 Stockholm
Sweden
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Switzerland
Site 38: Peter Buser, MD
Kantonsspital Basel
Hebelstrasse 32,
Basel, BS, CH-4031
Switzerland
Cardiology Department
University Hospital Basel
Petersgraben 4
4031 Basel
Switzerland
Tel: 41 (0)61 265 25 25
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Taiwan
Site 41: Chih-Chao Yang, MD
ational Taiwan University Hospital
Department of Neurology
No.7, Chung Shan S. Rd., Taipei 100, Taiwan
Site 42: Kong-Ping Lin, MD
Taipei Veterans General Hospital
No.201, Sec.2, Shipai Rd.,
Beitou District
Taipei City, Taiwan 11217
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Turkey
Site 45: Yesim Parmen, MD
Istanbul University
Istanbul Faculty of Medicine
Department of Neurology
Fatih/Capa 34093
Istanbul-Turkey
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United Kingdom
Department of Medicine
Royal Free and University College Medical School
Hampstead Campus, Rowland Hill Street
London NW3 2PF
United Kingdom
Tel: 44 (0)207 433 2815
http://www.ucl.ac.uk/medicine/amyloidosis/nac/index.html
Birmingham Women's Hospital NHS Trust
Metchley Park Road
Edgbaston
Birmingham B15 2TG
United Kingdom
Tel: 44 (0)121 627 2630
http://www.bwhct.nhs.uk/genetics-wmrcgs-home.htm
Neurosciences Department
Queen Elizabeth Medical Centre
Edgbaston
Birmingham B15 2TH
United Kingdom
Tel: 44 (0)121 472 1311
Department of Clinical Genetics
Ashley Wing
St James's University Hospital
Beckett Street
Leeds LS9 7TF
United Kingdom
Tel: 44 (0)113 206 7155
http://www.leedsth.nhs.uk/patients/service_directory/index.php
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United States
Site 11: Ronald Witteles, MD
Falk Cardiovascular Research Center
300 Pasteur Drive
Stanford University School of Medicine
Stanford, CA 94305-5406
Tel: (650) 725-6186
http://www.stanfordhospital.com/clinicsmedServices/COE/heart/DiseasesConditions/amyloid/default
Indiana University School of Medicine
Amyloid Research Group
635 Barnhill Drive
MS-A128
Indianapolis
Indiana, 46202-5126
Tel: (317) 278-3426
http://www.iupui.edu/%7Eamyloid/
Boston University Amyloid Treatment and Research Center
Boston University School of Medicine
715 Albany St.
K503
Boston Massachusetts 02118
Tel: (617) 638-4317
http://www.bu.edu/amyloid/about/what/index.html
Site 01: Mathew Maurer, MD
Columbia University Medical Center
New York Presbyterian Hospital
622 West 128th Street
New York, NY 10032
Tel: (212) 305-9808
Site 18: Rodney Falk, MD, FACC, FRCP
Director, Brigham and Women's Hospital/HVMA Cardiac Amyloidosis Program
Associate Clinical Professor of Medicine, Harvard Medical School
Harvard Vanguard Medical Associates
133, Brookline Ave.
Boston, MA 02215, USA
Tel: (617) 421- 6050
http://www.brighamandwomens.org/cvcenter/amyloidosis
Mayo Clinic Rochester
200 First St. S.W.
Rochester
Minnesota 55905
Tel: (507) 538-3270
http://www.mayoclinic.org/amyloidosis/
University of Tennessee
Medical Center at Knoxville
1924 Alcoa Highway
Knoxville
Tennessee 37920
Tel: (865) 544-9000
http://www.utmedicalcenter.org
Site 12: Stephen Gottlieb, MD
Director, Cardiomyopathy and Pulmonary Hypertension Program
University of Maryland School of Medicine
22 South Greene Street
Baltimore, Maryland 21201
Tel: (410) 328-8788
http://www.umm.edu/heart/about_us.htm
Site 03: Sanjiv Shah, MD
Northwestern University
201 East Huron Street, Galter 10-240
Chicago, IL 60611
Tel: (312)695-0008
http://www.nmh.org/nmh/heart/index.htm
Site 15: W.H. Wilson Tang, MD
Heart Failure and Cardiac Transplantation Medicine
Cleveland Clinic
9500 Euclid Avenue
Cleveland, OH 441955
Tel: (800) 659-7822
http://my.clevelandclinic.org/heart/
Site 20: Jeffrey Ralph, MD
University of California at San Francisco
UCSF Department of Neurology
505 Parnassus Ave., Box 0114
San Francisco, CA 94117
Tel: (415) 476-1000
http://www.ucsfhealth.org/adult/medical_services/blood/amyl/
Site 16: David Saperstein, MD
Phoenix Neurological Associates
5090 N. 40th Street #250
Phoenix, AZ 85018
Tel: (602) 258-3354
http://www.phoenixneurology.com/
Site 10: Edward J. Cupler, MD
Director, Neuromuscular Diseases Center
Oregon Health and Science University, CR-120
3181 SW Sam Jackson Park Road L226
Portland, Oregon 97239-3098
Tel: 503 494-7772
http://www.ohsu.edu/health/clinics-and-services/clinic.cfm?id=11423
Site 08: Daniel P. Judge, MD
Medical Director, JHU Center for Inherited Heart Disease
Division of Cardiology
Johns Hopkins University School of Medicine
720 Rutland Avenue, Ross 1049
Baltimore, MD 21205
Tel: (410) 614-3085
http://www.hopkinsmedicine.org/heart_vascular_institute/clinical_services/clinical_specialty_areas/center_inherited_heart_diseases.html
Site 05: Dianna Quan, MD
Department of Neurology
Academic Office 1
12631 East 17th Street, Room L15-5121
Aurora, CO 80045
Tel: (303) 724-2188
http://www.uch.edu/
Site 21: Savitri Fedson, MD
University of Chicago Medical Center
5841 S Maryland Ave
MC 2016 Rm A621
Chicago, IL 60637
Site 22: Annabel K. Wang, MD
University of California, Irvine
200 S, Manchester Ave. Ste#110
Orange, CA 92868
Site 23: Jin J Luo, MD
Departments of Neurology and Pharmacology
Director, EMG/Neuromuscular Medicine
Temple University School of Medicine
3401 North Broad Street, Suite C525
Philadelphia, PA 19140
Site 24: Srinivas Murali, MD
Director, Division of Cardiovascular Medicine
Gerald McGinnis Cardiovascular Institute
Allegheny General Hospital
320 East North Avenue
Pittsburgh, PA 15212-4772
Site 25: Horacio Kaufmann, MD
Director, Dysautonomia Center
NYU Medical Center
530 First Avenue, Suite 9Q
New York, NY 10016
Site 27: Sasa Zivkovic, MD
University of Pittsburgh Medical Center
PUH F875
200 Lothrop St
Pittsburgh, PA 15213
Site 33: Victoria Lawson, MD
Ohio State University College of Medicine
395 W 12th Ave
7th Floor
Columbus, OH 43210
Site 36: Marc A. Silver, MD
Advocate Christ Medical Center
4440W. 95th Street, Ste 108 NO
Oak Lawn, IL 60453
Site 39: Brian Drachman, MD
Presbyterian Medical Center
Philadelphia Heart Institute
39th& Market Streets
Philadelphia, PA 19104
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