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Groups and Organizations
The below organizations provide information, advocacy, networking, and support resources for TTR Amyloidosis patients
and their families.
Patient Groups and Organizations:
· Amyloidosis Foundation
http://www.amyloidosisresearchfoundation.org/ (United States)
· Amyloidosis Support Groups
http://www.amyloidosissupport.com/index.html
· Amyloidosis Support Network:
www.amyloidosis.org (United States - this page includes information in Spanish)
· National Organization for Rare Disorders, Inc. (United States)
www.rarediseases.org
· The Rare Disease Community (United States)
http://nord.clinicahealth.com/index.pl
· Amyloidosis Australia
http://www.amyloidosisaustralia.org (Australia)
· The Canadian Amyloidosis Support Network, Inc.
http://www.thecasn.org/ (Canada)
· Association Amylose Infos
http://www.amylose.net/ (France)
· La Società Italiana per l'Amiloidosi
http://www.amiloidosi.it/ (Italy)
· Groningen Unit for Amyloidosis Research & Development (GUARD)
http://www.amyloid.nl/ (Netherlands- in English and Dutch)
· Associação Portuguesa de Paramiloidose
http://www.paramiloidose.com/site.php (Portugal)
· Amyloidose PWAS
http://www.amyloidose.ch/ (Switzerland)
· National Amyloidosis Centre
http://www.ucl.ac.uk/medicine/amyloidosis/nac/ (United Kingdom)
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Links
