Living with, or finding out a family member has, or is at risk of, a rare genetic disease such as TTR amyloidosis can be worrying and challenging, both physically and emotionally. A list of support groups for your patients and individuals at risk of developing TTR amyloidosis can be found here.
The following downloadable factsheets summarize the information on this website:
For any questions regarding the THAOS registry or other health-related information, please contact:
If you are interested in becoming a THAOS Investigator, please contact: