News and Updates on THAOS Publication Activity

Abstracts and posters update

We are pleased to inform you that THAOS continues to have a presence at well-attended international events. In 2015 THAOS abstracts have been accepted at the 1st Congress of the European Academy of Neurology (EAN), Peripheral Nerve Society (PNS) 2015 Meeting, 19th Annual Scientific Meeting of the Heart Failure Society of America, and the XXII World Congress of Neurology.

In 2014, abstracts were accepted at the International Society of Amyloidosis (ISA) – XIV International Symposium on Amyloidosis, International Congress on Neuromuscular Diseases (ICNMD XIII), and International Conference in Neurology (ICN). In 2013, abstracts were accepted at the European Society of Cardiology (ESC), Heart Failure Society of America (HFSA) 17th Annual Scientific Meeting, International Symposium on Familial Amyloidotic Polyneuropathy (ISFAP), Peripheral Nerve Society (PNS) 2013 Biennial Meeting, American Academy of Neurology (AAN) 2013 – 65th Annual Meeting, and American College of Cardiology (ACC) – '13 & i2 Summit 2013.

Publications update

To date there are 4 manuscripts, 44 posters and 12 oral presentations which have been made at various congresses. A further two manuscripts are in submission.

THAOS publications

To date a number of manuscripts, posters and oral presentations have been published or given at various congresses.

Published articles in 2016

Published articles in 2015

Published articles in 2013–2014

  • The Transthyretin Amyloidosis Outcomes Survey (THAOS) Registry: Design and methodology
    Planté–Bordeneuve V, Suhr O, Maurer M, White B, Grogan D, Coelho T; Curr Med Res Opin.

  • THAOS – The Transthyretin Amyloidosis Outcomes Survey: Initial report on clinical manifestations in patients with hereditary and wild-type Transthyretin
    Coelho T, Maurer MS, and Suhr OB, on behalf of the THAOS Investigators; Curr Med Res Opin.;

  • THAOS: Gastrointestinal manifestations of transthyretin amyloidosis - common complications of a rare disease
    Wixner J, Mundayat R, Karayal ON, Anan I, Karling P and Suhr OB; Orphanet Journal of Rare Diseases

Abstracts and posters in 2015

  • Please click here for Posters and Abstracts presented in 2015. Please utilize the search and reorder feature by entering 2015 into the date field.

Abstracts and posters in 2013

  • Please click here for Posters and Abstracts presented in 2013. Please utilize the search and reorder feature by entering 2013 into the date field.

Presented posters in 2012

How to get involved in publications

If you have a proposal for a publication, please complete the Publication Proposal form

Publication resources

If you are interested in the THAOS publication strategy, you can view the publication manual and strategy here:


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The Investigator Portal of contains up-to-date information on THAOS activity, including:

  • Current data from the THAOS database, and archives of past data extractions
  • Updates on THAOS publications and activities at congresses and meetings
  • The THAOS Publication Proposal Form – submit your publication proposal form online
  • Spotlight interviews with THAOS Investigators

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